Giving Connection

Lupus Foundation of America Inc Southeast

This nonprofit has not yet verified the listed information.

Nationwide

Volunteer

2300 High Ridge Rd ste 375, Boynton Beach, Florida, United States

EIN Number: 43-1131436

contact information

Phone: (561) 279-8606

Hours: Closed

Mon - Fri 10:00 AM - 6:00 PM (EST)

Sat Closed

Sun Closed

Website: https://www.lupus.org/southeast/the-latest-florida

Email: infose@lupus.org

NTEE Code: G11: Single Organization Support

MISSION - WHAT WE DO

The Lupus Foundation of America works to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.

SERVICES - HOW WE DO IT

Research on Lupus The Lupus Foundation of America’s research is anchored in what matters: Improving the quality of life for people with lupus. That’s why our research efforts deliver the most significant impact on people’s lives in the shortest time possible. We tackle lupus from every direction to identify the causes, treatments, means to prevent and cure this life-threatening disease. Our patient-first research approach delivers better results to improve quality of life. Our donor’s research investment today drives breakthrough medical advances. We convene experts and partner with leading medical organizations that are on the front lines of lupus research to put lupus patients first. Through decades of experience, we demonstrate visionary leadership in lupus research. We began supporting stem cell research in 2006 and continue to do so today. With donor support, we are investing $3.8 million in the first US mesenchymal stem cell study in lupus. Pediatric lupus research had long been neglected, and that is why we made it a priority. We support leading pediatric rheumatologists to determine research needs in childhood lupus. We also are funding a lupus nephritis trial to develop a simple home test that can assess kidney function in children. We spearhead efforts to advance lupus drug development at every step in the process, including identifying improvements in clinical trial design so new treatments can get into the hands of people who need them faster. Education and Awareness Across the nation, our education programs and services all have a common purpose: To improve the lives of all people affected by lupus. We bring together all stakeholders with interest in lupus to translate research findings into useful programs, information, and tools for people with lupus and health professionals to ensure they know about new means to diagnose and manage lupus. Through our national network of local chapters, regional offices, and community-based support groups, the Foundation provides caring support and referrals to people with lupus, their families, and their caregivers, and help guide them through the complexities of living with lupus. We aggressively conduct outreach efforts to increase public understanding of lupus, and share stories of those who have lupus, through national awareness campaigns, celebrity engagement, and online and social marketing. Advocacy The Lupus Foundation of America advocates on behalf of all people with lupus, their families, and the health professionals who care for them. We rally all lupus stakeholders to educate government officials, policymakers, and industry leaders on the urgent need to expand public and private investment in lupus research, education programs, and support services. Through our advocacy efforts, we have stimulated more than $90 million in federal funding for lupus research and education. The Foundation holds an annual policy summit in Washington, DC. Each year, hundreds of lupus advocates from across the country visit Capitol Hill, and thousands more join virtually, to urge Members of Congress to help advance the development of new lupus treatments, increase funding for lupus research and education and ensure people with lupus have access to affordable, quality health coverage and care. MAPRx Coalition The Foundation is the convener for MAPRx, a coalition of patient, family caregiver and health professional organizations committed to safeguarding the well-being of patients with chronic diseases and disabilities who rely on Medicare Prescription Drug Coverage. MAPRx member organizations advocate on behalf of these beneficiaries and collaborate with national and state policymakers to ensure they have access to the medication therapies they need and deserve. World Lupus Federation The Foundation is the founder of the World Lupus Federation, a coalition of more than 200 lupus groups around the world, united to improve the quality of life for all people affected by lupus. Through coordinated efforts among its global affiliates, the Federation creates greater awareness and understanding of lupus, provides education and services to people living with the disease, and advocates on their behalf. The Federation is the sponsor of the annual World Lupus Day observance on May 10.